Thursday, November 1, 2007
Sunday, October 21, 2007
Monday, July 2, 2007
Thursday, June 21, 2007
Wednesday, June 6, 2007
Monday, June 4, 2007
Friday, April 27, 2007
He came home Thursday! He's doing fine. He is still on oxygen. That was a little scary at first but it doesn't seem so bad now. He has to stay home for a while, which is normal. He does have plenty of Dr's appointments though. He has to see an opthalmologist, pediatrician, the pediatric surgeon that repaired his hernias, a home health nurse that comes to the house, and an occupational therapist. So, we'll be busy for a while, but it is so worth it to have him home!
Saturday, April 21, 2007
Tuesday, April 17, 2007
Monday, April 16, 2007
Tuesday, April 10, 2007
I am glad though, that we know why he's having a hard time and now it can be treated. Thank you Jesus for medicine and doctors and nurses!
Please continue to pray for his strength! Love you all!
Thursday, April 5, 2007
Tuesday, April 3, 2007
Wednesday, March 28, 2007
Noah is doing better. The sample from the spinal tap has not grown anything, and it's been 48 hours. They are giving him real milk again, in a bottle! I was able to feed him last night and tonight. He drank the whole bottle tonight! He's off of the c-pap. Thank you for your prayers! They worked, once again.
Friday, March 23, 2007
Strep B is usually carried by the mother and transfered to the baby. Since he is premature, they are testing my milk that he is drinking to see if he got it from there. There is also another baby in the unit that has it, but the doctor said it is VERY rare for it to be transfered there. So, we will see how things go.
Thanks for your prayers!
Wednesday, March 21, 2007
Sunday, March 18, 2007
The ophthalmologist looked at his eyes on Friday. He didn't put any notes in the chart so that means his eyes looked good. All of the nurses say he usually calls if there are any problems.
He's eating well, almost an ounce.
He got a bath tonight. He was screamin'. :) But he calmed down once we got to hold him. He's such a sweet baby.
God really did a miracle through him. I was just thinking about the day I called my boss and told her the doctor said he wasn't going to make it. She said, "we're not going to believe that." It's amazing how He can put such an awesome support group in your life when you need it. God is just so smart! :)
Well, here is a link to some pics. Some are from a few weeks ago and some are from Sat.
Sunday, March 11, 2007
He now weighs 2lbs 15.2oz. Only .(point) 8oz away from being 3lbs! Yay! They took him off the c-pap yesterday at noon, but put him back on tonight because he wasn't ready. But we were able to hold him for a while with just the canula (the regular oxygen t-bar everyone is familiar with). Tonight he had has eyes open for the longest we've ever seen them! He's so beautiful. He also moved to the other side of the NICU. The area he is in now is for babies that do not need "acute" care. So, he's doing great! :)
Monday, March 5, 2007
Well, today was a pretty eventful day for Noah. The first time we visited, we discovered that his diaper had sprung a leak all over his onsie and blankets, so I got to help change his clothes and bedding. Then we realized that he had pulled his feeding tube out. Which wasn't the first time. The respiratory therapist said he pulled it out about four times yesterday. While she was changing is tube, we were able to see him without all of the tubes and hat on. He's getting cuter every day!
The second time we came back with Grandma and Grandpa. Then, I got to hold him. :) We are able to hold him every day, for the most part. He's doing really well. His oxygen is good and he's still eating. He's 2lbs and 10oz.
Noah's neighbor is going to have surgery this week. When I was talking to his mom, she was telling me that before he was born, she had kind of strayed away from God and was wondering where He was in her life. After all of the events with her son, she had become closer to Him. She said that so many people were there for her, and that had an influence. The same pastor that prayed for Noah also visits them. (my friend's pastor) He also made an impact on that family. It is awesome what God can do. Like I said when Noah was born, God will be glorified, and he has.
Wednesday, February 28, 2007
Monday, February 26, 2007
Another doctor said he has heard nothing but good reports about Noah today. He's doing fine. He is eating again and keeping most of it down. They're giving him medicine for acid reflux. His oxygen was a bit better today.
I made a sign to hang by his crib with a list of things that he likes. So, the nurses who have never had him can know what makes his stats stay high. The nurse I gave it to said it was a good idea.
We're taking a class on Wednesday so we can hold him again! I can't wait!
Oh, he's 2lbs 7.5oz.
Friday, February 23, 2007
He's having some trouble with eating still. He's not keeping it down all of the time and some of the residual is discolored. So, they're going to give him a break from eating and then try again.
Well, that's about it. :)
Thursday, February 22, 2007
He is throwing up his food every now and then. While he was doing it today, he pulled his feeding tube out. He's feisty!
My friend Jessica's pastor came to pray for him tonight. I was very thankful for that. I could feel God's power moving while we were praying.
Oh, the nurse practitioner talked to us about his brain scan. She said it was stable, no dilation of the ventricles, and no fluid except for residue. So that's good!
Well, I could type more but I'm so tired! Thank you for your continuous prayers!
Wednesday, February 21, 2007
I know many want to see him. Please understand that we are trying to do what’s best for him so he can come home healthy and healed! Then we can all hold him and squeeze him all of the time! (after mom and dad, of course! J ) He can still have visitors, but not often. We’ll keep taking pictures though!
Thank you for your prayers!
Monday, February 19, 2007
So, Steven and I had a bet going as to how much Noah would weigh at his weekly Sunday weigh-in. His weight last time was 2lb and .(point)2 oz. Steven said he would weigh 2lb 3oz. Jenny said he would weigh 2lb 4.5oz. Steven said, "no, you've over bid." Well, this evening the nurse said that he now weighs 2lb and 4.5oz! hehe, I won! :)
The doctor also talked to us. She said she was very pleased with how he was doing. He's eating everything they give him (10 ml now). His brain scan looked good last week so she wasn't sure if the neurosurgeon was going to do another this week. She said she wanted him to gain more weight before she put him on the c-pap so he wouldn't fail again. Tomorrow is the last day of his antibiotics. He's coughing a lot of that stuff in his lungs up still. (I know that sounds gross, but we're really thankful for it).
When we were there tonight he was so feisty he decided to scoot about 3 inches on his own. He's such a wiggle-worm when he's feeling good. :)
So, we're thankful that he is doing so good now and we're praying God will continue to heal him. Thanks for your prayers and encouragement!!
Friday, February 16, 2007
Noah is doing fine. He's eating again. 5ml every 3 hours to start off. His oxygen is improving and the antibiotics they gave him are helping a lot. He's getting so much bigger! I love to just look at him. He's also opening his eyes more these days. As I was singing to him last night he was looking at me. He's so cute! :)
When we were there tonight he was really fussy. After a bit he started getting really mad. So, the respiratory therapist came and suctioned his lungs. He was very calm after that. The nurse said it was good that he is getting that stuff out of his lungs.
That is about all that's happening right now. Please be patient with our posts, we are soooo busy! Thanks for your continuous prayers!
Wednesday, February 14, 2007
His head ultrasound came back ok. There were no changes, so it's stable.
The nurse told me today that he looked like he was feeling better. I'm praying his lungs will be healed quickly. (I want to hold him again!) :)
Monday, February 12, 2007
I'm also having a hard time with the doctor situation. I had requested if we could switch to another doctor that we really like. He informs us often and has a more aggressive approach of treatment. Anyway, I can never get a straight answer as to if we can switch. I found out tonight that he is leaving in a month. So, I don't know what we're going to do. Just keep praying that we'll hear everything we need to hear from his doctor and that God will guide her as to what to do.
Saturday, February 10, 2007
Our new nickname for Noah is "squeaker." No, not really. When he tries to cry he squeeks. It really sounds cute. We heard him sneeze for the first time yesterday. It's funny how you find joy in the smallest things.
I know the picture is blurry. We were just so amazed at how big he is getting. I had to ask the nurse if there was anything wrong with his belly because I thought it was so much bigger than the day before! But nothing was wrong, he's just eating and getting stronger.
Everything is going well so far. He's eating 12ml, 3 times a day. His head isn't getting bigger and he's still not showing signs that the hydrocephalus is bothering him. I pray that he keeps getting stronger and healthier!!
Wednesday, February 7, 2007
When I arrived at the hospital tonight the neurosurgeon was ready to talk to me. Noah's bleed is worse than it was. He now has hydrocephalus. Which means he has spinal fluid built up in the ventricles in his brain. The ventricles are swelling and causing pressure. He is too small to be operated on and the doctor said he is showing no sign that it is bothering him. The signs would be breathing problems and rapid decrease in heart rate. So, he is going to watch him every day and continue to do scans every week. Sometimes the condition can go away, especially since his skull is soft. The fluid can be reabsorbed. If not, they can drain the fluid or put a shunt in when he is bigger. So, we'll just have to see how he does and continue to pray for healing.
Tuesday, February 6, 2007
Well, Noah is now on a C-pap, which is a mask on his nose that blows oxygen in. He doesn't have the tube in his throat anymore! He is eating a lot, 7ml every 3 hours and taking it well.
We were standing there when the nurse was changing his diaper tonight. Once she took it off, she said, "oh! a hernia." The respiratory therapist said, "oh yeah, it's been there, it does look bigger now." Steven and I both had a look of complete shock and/or horror on our faces. So, the nurse immediately calmed us down by saying it was normal (we hear that a lot) and that it could go away or they can fix it. They wouldn't repair until he is ready to come home. However, if it caused complications, they would have to repair it immediately. Another thing to pray about. (and of course worry)
We did get the opportunity to hear him cry for the first time and see his cute little face with no breathing tube. He is THE cutest baby I have ever seen! :)
He had a brain scan today but we won't know the results until the doctor can read it. I'm calling tomorrow morning to talk to a doctor about it and ask about the hernia. Hopefully there will be a doctor available to talk to!
Thanks again for your continued prayers. And thanks for all of the posts! We love to read them!
Thursday, February 1, 2007
The nurse said he had a good day today. The doctor called again to just give me an update. He said his lungs are still not where he wants them to be. They're going to do another x-ray on them tomorrow. They did other tests to check his bones, liver, kidneys, etc... and the doctor said they came back great. He said he is focusing on his bleed and his lungs. I like this doctor. He is filling in for the other doctor while she is on vacation. But, he seems like he is more aggressive in his treatment and really wants to get him better. So, I talked to the social worker that helps parents of preemies and asked her if we could switch. She really understood but wasn't quite sure it was possible. However, she said she would talk to him and see. I pray we will be able to switch.
I went back to work this week. I was glad to be back. Everyone there is very helpful, they are a blessing.
Noah gained 1/2 an oz since Sunday. He's getting fatter! The doctor wants to start feeding him more.
He really is doing well, I just have to remember that it is going to take time for him to be a "normal" baby.
Tuesday, January 30, 2007
Noah's doctor is out of town for two weeks so he has a fill in doctor. This doctor calls me yesterday to tell me they're going to start him on steroids to help his lungs get better because his oxygen wasn't going so well. It has gotten better since then. The steroids will stop tomorrow. He also told me that the plates in his head had moved so he wanted to do another ultra sound because there might be fluid in his brain. The results of the ultra sound were the same as they were last Thursday. So, no fluid! He opened his eyes really wide last night and a little tonight. They also did an x-ray of his lungs. Once side is clear and the other is not. They're giving him a massage every 6 hours for 48 hours to break the stuff up. He is looking good still, kidneys are working fine. So, we're just pluggin' along...
Sunday, January 28, 2007
He has two primary nurses now. Both of them are very nice and we appreciate the way they take care of him. They each work 3 days out of the week, 12 hour shifts. So, we have to find more primary nurses. They suggested we do that so he will have less variation.
They had to put an IV in his head because the one in his hand went bad. It doesn't look as bad as I thought it would, but still not very comfortable.
We'll be taking more pictures today so be looking for them!
Thursday, January 25, 2007
It was alarming to hear the doctor say she was really scared this morning. But I am thankful that she can be so real with us. I asked her if there was a chance his bleed will get smaller and she said, "oh yes, it will get better." She is a good doctor. We were also told that at this age there is nothing they can do if the kidneys fail. I am glad the medications are working and I pray they continue to work.
Thank you all so much for praying!
As soon as I went in to the room today the nurse was trying to get Noah to breath more and all of the alarms were going off. The doctor was there and said she was just about to call me. "We've had a rough morning," she said. Noah's kidneys are not working properly. She thought something was wrong yesterday when his potassium level was high. She said this morning he wasn't moving as much as he normally does. His blood pressure is low and she thinks he has an infection. So, they're giving him an antibiotic for the infection and demorol for the blood pressure. Now, after telling me all of this she said she can't stay and talk because she has other patients to see. She told me to come back later because she'll be there all night and to ask the nurse if I had any questions. I tried my best not to burst into tears, but I couldn't help it. I wanted to stay strong for Noah, but I just got so scared. Through my tears and sobs, I managed to tell him that Mommy loves him and everything was going to be ok. It's even harder to hear news like that because EVERYONE around can hear what the doctor is saying and then can see me crying. I didn't care though, I just let them fall. The nurse said the medicine will help. His blood pressure will be stabilized and will allow more blood to flow to his kidneys. He's so tired now that he's letting the ventilator do all of his breathing. His rate was up to 65% and the machine was giving him 20 breaths a minute. Last week the rate was 21% (which is great, it's what we breath) and he was only given 10/min.
Steven and I are going back up there to talk to the doctor. Hopefully she will be able to explain a little more and answer our questions.
If you read this, please continue to pray for his strength and healing. Love you all!
Wednesday, January 24, 2007
Still off of the light, yay!
Feedings were increased to every three hours, woo hoo!
Doctor decided to wait until Friday to do ultra sound of his brain... now we have wait even longer :(
I chose the first primary nurse for him. Primary just means she will be assigned to him every time. I asked this nurse because he seems to always be calm when she is with him and she keeps his bed clean.
He opened his eye a little more when I was there.
The doctor wants to take him off of the ventilator tomorrow and put a nose tube in. She's been saying that for a few days so we're not really sure it's going to happen. It just depends on how he is doing.
He looked really good today. The nurse kept saying how feisty he is. I'm glad he is, he is a fighter!
Monday, January 22, 2007
Yesterday was a hard day for me. For some reason it was just hard to see him hooked up to everything. His breathing tube looked crooked so it made is mouth stretched to the side. I guess there will be good days and bad days for us too. It helps to have a wonderful husband by my side to tell me everything is going to be ok. I couldn't have made it through this without him. He was there every day and night at the hospital, always there to comfort me and cheer me up. I couldn't ask for a better husband.
I'm also thankful to wonderful friends and family who were either there or called someone every day. Mom and dad came to see us every day. Stephenie and Michelle came every day and brought lots of stuff. My friends at work came to visit and kept in contact everyday. They also supplied me with plenty of things to do while I was laying flat in bed. Our whole family kept in contact with me, Steven, or my mom every day. I know a LOT of people were praying and still are. I am thankful, very thankful.
The thing that keeps this little family going most is God. When we first went to the hospital they told us that any baby born before 24 weeks has no chance of survival. I believe God let him stay in for one more week so he would be more than 24 weeks. I believe that Noah's life is going to be a testimony to God's awesome power. We've seen doctors and nurses already amazed at how strong he is. I know this road is going to be long and have ups and downs, but it's going to lead to something great. I'm excited to apart of it!
Sunday, January 21, 2007
Today Noah got moved into a isolette. There were a few other notable event's for Noah today. The nurses fed him his first breast milk. Assuming all goes well they . Also our little guy has grown half an inch since birth, but unfortunately he's lost about 3 ounces in weight. The nurses assure us that this is perfectly normal, but we can't wait to see him starting to get some fat on him. I also included a picture of Mom next to his new bed. If you would like to see some photo's click here.
Saturday, January 20, 2007
Now he is connected to a ventilator to help him breath. His heart rate, oxygen level, blood sugar, and everything else imaginable are monitored. He only needs a little help to breath. The doctor even thinks the tube may be removed tomorrow and replaced with a tube in his nose to help him breath. His heart rate is usually good, with a few drops every now and then. They call it a "brady," which is short for bradycardia. Noah's blood sugar is a little high sometimes, but as of now it is going back down. He was under a blue light for his jaundice, but they were able to take that off today.
Last Wednesday the doctor informed us that he has a grade 4 bleed or IVH(Intraventricular hemorrhage) on the right side of his brain. She was thankful that it was only on the right side. There's nothing they can do about it now, except to monitor it. If the condition gets worse, they could treat it. It could eventually cause hearing, vision, or another type of learning problem. The doctor said that it could be reabsorbed and just go away. So, they're going to do a scan next week.
We are thankful for all that God has done so far and pray that Noah will continue to grow and be strong with little complications.
Friday, January 19, 2007
Although Jenny remained dilated and was forced to stay in bed the next few days went by extremely slowly and were somewhat uneventful. Every morning a nurse would come by surprised to see us still there.
On the 10th of January one of the nurses discovered that my wife’s water was slowly leaking and ultra-sound showed that two thirds of the fluid around the baby was no longer there. To make matters worse it was clear that the baby was in a breach position which could only lead to more complications during birth. In full-term babies if they were breach a doctor would recommend a c-section, but with the doctors advice we decided to have a natural birth if the baby was going to be born before 26 weeks. This was an extremely difficult decision to make because if the baby's head gets stuck during delivery it could harm the baby.
On January 13th around 3am my wife woke me up because she was having strong contractions. Unfortunately this time they would not subside. After more than 12 hours of of labor the doctor decided that it was time to for my wife to start pushing. Since Noah was only 24 Weeks the neonatal doctor was called in to attend the birth. At which time she asked us if we wished to resuscitate him. This was certainly the worst decision either of us have had to make in our lives. I wasn't even sure how to reply at first. We eventually came to the agreement with the doctors that they would try to resuscitate and continue to do so as long as he continued to be responsive.
Just a few minutes later my wife gave birth to our son Noah at 4:13pm. He came out butt first with his hand and arm hanging down. Fortunately his head did not get stuck for any period of time and Jenny only had to push a few times since he was so small. He weighed 1 pound and 11 ounces and although he required resuscitation, he was very responsive.
Thursday, January 18, 2007
When we kicked off the new year in 2007 my biggest worry was completing our kitchen renovation before the baby was born. Which didn't seem like much of a problem since he wasn't supposed to be here until May 1st, but just a few days after the new year our world was turned upside-down. Around 1am on January 3rd Jenny started having cramps after she went to bed. She had cramps occasionally during her pregnancy and neither of us really thought much about it, so I did what any caring, concerned husband would do, I went to sleep. Around 6:30 that morning I woke suddenly to the sound of my wife screaming franticly so I rushed to see what was wrong and she whaled something that I couldn't possibly have understood, but I realized what was going on when I saw all of the blood everywhere. She was unmistakably in labor. I was still sleepy-eyed and half asleep, but after asking my wife very nicely to shut up for a second and calm down, I remember just concentrating on and getting all of the things done that I would do every morning before going to work.
Put Dog outside? Check.
Dog have water? WHO THE HELL CARES YOUR WIFE IS IN LABOR!
So I loaded up my wife in to the truck and speed off to the hospital. On the way I tried to console her and tell her I was sure everything was going to be alright, but I honestly had no clue what was going on. I was just as startled and confused as she was, but one of us had to drive us to the hospital.
After we arrived at the hospital a couple different nurses came by and poked on my wife and ran ultra sounds on her while talking amongst themselves. I'm certainly no doctor, but I could tell by their tone that it was something serious. They couldn't tell us anything; We had to wait until the doctor got there to find out what was going on. We were convinced that the doctor would just say that the cramps caused some bleeding, but everything would be Ok. In reality what the doctor would say was much worse than either of us where prepared to accept.
Dr: "Are you the Baby's Father?"
Dr: "Well, I am very sorry, but I don't think we are going to be able to save your baby."