Sunday, January 28, 2007

Haning' in There

Noah is doing well. They did an echocardiogram on Friday of his heart. It's basically an ultrasound. They performed it around 11:00am, told me the results would be in that early afternoon. So, I left and went back early afternoon. The results weren't in yet. After waiting until 6:30pm, they still weren't in and I had to leave because it was a shift change. Steven and I went back up there that night and they were finally in. The nurse said that it came back normal but he does have a PDA . She said it was very small and would ask the on-call doctor to come talk to us about it. I had already known that's what they were looking for and what it was because there is another baby two beds down that has it and they had to do surgery on her heart. So, I was a little nervous. Well, she talked to the doctor and he wouldn't talk to us because our doctor did not tell him why she ordered the echo and he didn't want to step on her toes. I couldn't believe it! But, I understood. So, the nurse advised us to call in the morning. So I called. I was able to talk to the nurse practitioner. She was very helpful. She said the PDA is so small that they won't treat it now in hopes that it will close on its own. She also said his blood and lung cultures came back. Blood cultures are negative and his lungs did have bacteria in them, but were expected. His blood pressure is still good with the medication and kidneys are working. I asked her about his oxygen levels because were very concerned and it seemed as though no one was giving us the answers we wanted. She said he is developing a chronic lung disease that is expected and it will take a while for his lungs to grow stronger. That is why he is requiring so much oxygen and help from the ventilator. Eventually they will be able to reduce the amount they give him. He more than likely will have to go home with oxygen.
He has two primary nurses now. Both of them are very nice and we appreciate the way they take care of him. They each work 3 days out of the week, 12 hour shifts. So, we have to find more primary nurses. They suggested we do that so he will have less variation.
They had to put an IV in his head because the one in his hand went bad. It doesn't look as bad as I thought it would, but still not very comfortable.
We'll be taking more pictures today so be looking for them!

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